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PEM Friends is a small UK-based charity that supports Pemphigus and Pemphigoid patients or their carers.

“PEM” is a term we use to abbreviate pemphigus and pemphigoid. This website brings together information about the types of PEM, ways to manage PEM conditions and the support we offer. The work we do to further understanding of our diseases is also described, including projects we have been involved in. Some tools and items that may interest health care professionals are given in the 'Clinicians' section.

PEM Friends is run by volunteers, many who are patients themselves. Our main aims, how we are funded, how we are managed and the professionals who advise us are outlined in the 'About us' section, along with a summary of the PEM Friends story.

See our Facebook or contact pages for information how to join PEM Friends.

#25yearsofPEMFriends- #14

Time for another story and this one highlights the work that many of us do with other organisations. Working With The British Association of Dermatologists by Isobel Davies #25yearsofPEMFriends

#25yearsofPEMFriends- #13

Story 13 is by our Treasurer John. Now we are a charity this is such an important job! Proper Financial Reporting by John Kendrick #25yearsofPEMFriends

#25yearsofPEMFriends- #12

In story 12 Julie (our Facebook Group manager) tells us how the Covid pandemic prompted our Thursday Lunchtime Zoom sessions. An opportunity to talk face to face with others all over the country. Zoom Sessions by Julie Martin #25yearsofPEMFriends

Trina Harris - Pemphigoid and Pemphigus. Trina shares her experience of living with pemphigus vulgaris

Trina's Video Trina shares her experience of living with pemphigus vulgaris – from the life-threatening challenges of airways blistering to the emotional toll of her condition. She reflects on the experiences of others with pemphigoid and pemphigus, and highlights the importance of clear communication and joined-up care in helping patients feel supported and understood. Click here to view her video