Home

PEM Friends is a small UK-based charity that supports Pemphigus and Pemphigoid patients or their carers.

“PEM” is a term we use to abbreviate pemphigus and pemphigoid. This website brings together information about the types of PEM, ways to manage PEM conditions and the support we offer. The work we do to further understanding of our diseases is also described, including projects we have been involved in. Some tools and items that may interest health care professionals are given in the 'Clinicians' section.

PEM Friends is run by volunteers, many who are patients themselves. Our main aims, how we are funded, how we are managed and the professionals who advise us are outlined in the 'About us' section, along with a summary of the PEM Friends story.

See our Facebook or contact pages for information how to join PEM Friends.

Survey by The British Skin Foundation and the Skin Health Alliance

Please note that this survey is for UK residents only Click here The British Skin Foundation and the Skin Health Alliance have teamed...

In Search of Scar Prevention for Patients with Ocular Pemphigoid: "The MMP Oral Disulfiram Study"

A talk given over Zoom by Prof. Saaeha Rauz and her team is now available Still Recruiting Professor Saaeha Rauz and her team from the...

Managing Pemphigus and Pemphigoid from a Nursing Aspect

A talk given over Zoom by Nurse Molly Connolly on 31/10/2024 Molly Connolly from the British Dermatology Nursing Group (BDNG) got in...

A big THANK YOU to The British Association of Dermatologists (BAD)

PEM Friends would like to say: "A big THANK YOU to The British Association of Dermatologists (BAD) who supported a grant we submitted...

The latest PEM patient journey is now available.

The Bullous Pemphigoid patient journey output from the ePAGS (European Patient Advocacy Groups) is now available. This journey includes...